Awareness · Expression · Health · Inspiration · Links · Personal · Random · Writing

Blog Updates And Special

I have made a few changes to this blog lately so I wanted to let those who haven’t checked it out yet what has changed.

  • First of all, we now have a subscriber popup where you can sign up for upcoming weekly newsletters, posts, and thoughts. I will keep tweaking the site and newsletters to make it easier for those of you who subscribe.
  • Secondly, I am very excited to share this with all of you. The first post for Thoughts Of A Spoonie, has now been posted!

****DON’T FORGET TO SUBSCRIBE FOR WEEKLY NEWSLETTERS!! IF YOU FORGOT TO SUBSCRIBE, SEND ME AN EMAIL AND I WILL GET YOU THE LINK!****

  • Thirdly, I plan to add an extension to the popup that will allow subscribers to submit blog posts/stories/thoughts and questions that I will share on my blog over time.

And here we go….

Autoimmune · Awareness · Chronic Fatigue Syndrome · Chronic Illness · Chronic Pain · Depression · Endometriosis · Expression · Health · Inspiration · Interstitial Cystitis · Invisible Illness · Links · Social Media · Writing

Tips From Chronic Illness Bloggers

I have been a member of Chronic Illness Bloggers for quite a while now, and I am just amazed at how much I am learning, and getting to know more of the Chronic Illness Bloggers that are also members.

Each week, or sometimes more often, we are sent emails that detail all the things that have happened that week, and I saw this and I just had to share with all of you! At first when I started blogging, I figured that just my family and a few friends would follow my blog, and that was okay. Since becoming a Chronic Illness Blogger, my stats and followers have skyrocketed using these tips which you can find HERE, and from having the amazing chance to participate in some amazing opportunities and share what I have learned. If you are a Chronic Illness Blogger who would like to have this chance, you can find out more HERE.

 

A Day In The Life With Chronic Pain · Autoimmune · Awareness · Books · Chronic Fatigue Syndrome · Chronic Illness · Chronic Pain · Depression · Expression · Health · Inspiration · Interstitial Cystitis · Invisible Illness · Links · Mental Illness · Personal · Social Media Sites · Writing

Stretched Too Thin….?

So I am going back and forth trying to decide if I want to take on another blog and have it focus on the different diseases that people have and how it effects them and those in their lives. I  have this blog, obviously, but I would like to make a new one that focuses completely on other diseases and illnesses besides mine.

I just finished reading a book called You’re Not You by Michelle Wildgen. And if the book wasn’t amazing enough, there was a movie made in 2014. You can see the trailer HERE.


Bec is adrift. It’s the summer before her junior year in college. She’s sleeping with a married professor, losing interest in her classes, and equivocating about her career. She takes a job caring for Kate, a thirty-six-year-old woman who has been immobilized by ALS.

As it turns out, before the disease Kate was a stylish and commanding woman, an advertising executive and an accomplished chef. Now, as she and Bec spend long days together, Bec begins to absorb Kate’s sophistication and her sensuality, cooking for her, sharing her secrets, and gradually beginning to live her own life with a boldness informed by Kate’s influence. The more intense her commitment to Kate, the further Bec strays from the complacency of her college life. And when Kate’s marriage veers into dangerous territory, Bec will have to choose between the values of her old life and the allure of an entirely new one.

My husband is worried I am pushing myself too hard, which I probably am, but this is something I would love to do, either on my normal blog or create a new one.

I want to learn more about other illnesses and help others any way that I can because I understand what it’s like to feel like you need t0 be able to handle your illness yourself.

I understand how you spend months, even years being told that your illness is all in your head and as much as you try to convince others that it’s not, the more you start wondering if what they said is true, maybe it was all in your head.

I understand how diagnosis changes your life in more ways than get more most people even realize, especially if you have in invisible illness and you look fine on the outside.

I know how validating it is the moment the doctor comes in and says you have a Chronic/Invisible/Fatal illness. You sit there, your hands fidgeting, your heart beating so fast you think you might pass out. You want to scream at them to tell you what the tests said already, not try and make small talk first.

You are so relieved that your illness is not in your head, that you are not crazy, there actually was something wrong with you this whole time and if you would have listened to the people who told you it was probably nothing and that they wouldn’t bother going to the doctor for something so minor, you may not have caught this fast enough to help stop the progression of the symptoms. You (Well, I know I did) feel a little guilty satisfaction and smug when you tell those who doubted you that you do have something wrong with you and that they were wrong.

I know what it feels like when the relief that it wasn’t in your head goes away. Finally, I have a diagnosis and it wasn’t in my head after all! Then, sometime later after the doctor leaves and you go back home, you crash. Hard. You’re whole world has changed. It suddenly hits you that nothing will ever be the same again. You spend hours imagining how life would be from now on and how you imagine handling it. No Scenario can even come close to what really happens when you get sick.

When you get sick, everyone always says “I am always here for you.” but in my experience they say that but always end up walking away the moment you start struggling with your illness and you cannot go places or do the things you used to do. They loved hanging out with you and constantly making plans as the person you were before. They are always there for you when you are healthy and can keep up. They aren’t there for you when you get sick because you cannot go places and do the things you used to do. You change; physically and emotionally. You become a different version of you. You have to stop going the pace you were before. You’ve had to take a step back from things you love.

And….end ramble 😐

But my husband is probably right. I currently have 13 social media sites just for my blog that I try to keep up with, I have two Facebook pages that I created, my personal Facebook, Beautiful Tarnished Spoonies Facebook Group I made, and I work for Chronic Illness Bloggers.
I want to know what you all think. Comment below or reach me on any of my Social Media Sites! I will take some more time to think about it, but do you think it is  a good idea?
Awareness · Chronic Illness · Chronic Pain · Depression · Endometriosis · Expression · Health · Inspiration · Interstitial Cystitis · Invisible Illness · Links · Mental Illness · Random · Social Media Sites · Writing

Beautifully Tarnished Spoonies

I know I posted about this before, but I am updating it to be more current. Most of you know that I have started a support group for Spoonies on Facebook. When I started it, it was called One Spoon At A Time. After finding out there is a group with the same name on Facebook, me and my amazing group have decided to change the name to Beautifully Tarnished Spoonies, thanks to my friend Liz. Maybe Facebook used to have a feature where if you tried naming your group or page something that was already on Facebook, you had to name it something different, but it doesn’t seem to be the case anymore.

Feel free to check it out, join, share, and of course add friends!!!

I will be editing and adding to this post for a while as my support group slowly gets bigger.

If you have any questions or just want to talk to someone,  you can contact me at any of my Social Media Sites or on my Contact Me page.

30 Day Challenge · Expression · Inspiration · Links · Random · Writing

30 Day Challenge: Day 21

Day 21: Do you have a smartphone? If so, tell us why you love it

I still find it strange to this day that I used to be so proud of my flip phone because it could have music and access the internet! Now I have a smartphone and holy cow, I should have gotten one years ago! Since I started blogging and sharing my posts worldwide (I still can’t believe it!) I can access everything so much easier when I am out and about. No more sitting in front of a computer and having to sit still for a long time or not being able to move because if I did, the internet would frag out on my computer.

I have come a long way in my blogging since getting a smartphone! I love that I can write posts when I have time and if I know I will be feeling crappy, I can write a post and have it scheduled so I can get ahead in my blogging and not have to worry about posting every day. I love being able to get notifications and share posts on all of my Social Media Sites!

I can keep up with friends and family from the comfort of my own bed, which is the most amazing thing ever since I feel bad a lot of the time and cannot go out all the time like others want me too.

Links · Random · Social Media Sites · Writing

Acceptable Amount Of Social Media Sites?

I have finally marked two years since I started blogging! Woo hoo!! But while I am excited for this amazing mark in my life, it has also come to my attention that I have WAYYYYYY too many social media sites. At first it was just two or three to try and promote my blog and share it for others to see, but now it is almost an unmanageable amount of social media sites so I thought I should ask you guys. How many social media sites do you think are acceptable when trying to promote or show others your blog or website?

Comment below!!

Expression · Health · Links · Social Media Sites · Writing

Social Media Sites (Requested Repost)

I got a request from a reader to post my Social Media sites for all of you again. Some of them have been updated and changed.

Below are my social media sites for Dangerously Normal Spoonie. Happy reading!

 BLOG

 PHONE: 208-254-2600

EMAIL: dangerouslynormalspoonie@gmail.com

 MEDIUM

 THE MIGHTY

 IC-TODAY

 FACEBOOK-DANGEROUSLY NORMAL SPOONIE

FACEBOOK-CHRONICALLY ILL AND FABULOUS

INSTAGRAM

PINTEREST

TUMBLR

TWITTER