Uncategorized

****2ND UPDATE!!!****

I have spent weeks thinking about this and weighing the pros and cons, making lists, worrying about it, before finally deciding that this is what I want to do.

Dangerously Normal Spoonie has been my blog since I got my Interstitial Cystitis, Endometriosis, Pelvic Floor Dysfunction, Anxiety and Depression Diagnosis almost 5 years ago. And while I love this blog and the chance to help people, I want to change the way my blog is, as well as have a new name to go with the changes I plan to make in the next month.

Don’t worry, I will not be stopping blogging, and I will still try and help people, but I have felt like I needed to change the way I blog for a while and now I finally have the courage to do it, even though it means pretty much having to get my follower count up from 0. To me, this change will be worth it.

That said, I already created my new blog called Spoonie Sanctuary so please check it out and don’t forget to follow me to continue getting posts, updates and best of all, changes from me!!

For those who seem to have issues viewing links I post on mobile, message me and I will send you the link or you can just visit https://spooniesanctuary.com/

At the end of this month/beginning of next month, I will be deleting this site and completely starting over with my new site so this site will no longer be available! I will continue posting on this site until I make the final move, but I will also begin posting on my new site so don’t forget to check it out!!!

All of my Social Media Sites will stay the same, just with the new blog name, so don’t worry about having to follow all my sites again when I move to the new site!!

I am excited to begin the changes for this blog, as well as start a new journey and I hope you will join me!

Uncategorized

😂😂

Uncategorized

Strong

Everyone always tells me how strong I am, how they wish they could be as strong as me. What they don’t understand is that I don’t choose to be strong. I have to be. Yes, I have been through a lot in my life, yes, sometimes life knocked me down but over time I had to learn how to get back up and keep on living, no mater how impossible it seemed sometimes.  It was either be strong and deal with everything, or end my life over something that I now see was so small.

I’ve been through more than most people should ever have to go through. I used to let it get me down and I would wallow in it, falling into a deep depression. But someone once told me that I can either let my past destroy my life and never be happy again, or I can push through and eventually be happier than I ever thought possible.

So, long story short, Don’t let your past or present get you down. Push forward and I promise you you will have a amazing life once you come to terms with whatever it is that is holding you back.

Poetry · Uncategorized

Confession

This is another VERY small part of my book in progress. Feel free to share.

Confession-Written by Me

Pick up my pen
Write it all down
My words, My feelings
Dont judge me
Before I tell you
How i feel
What this all means.

Deep breath, be patient
This is never easy
So much on my mind
So many emotions
So many feelings
Open my mouth
Begin to speak my words.

Finally it’s all out
You know everything
Suddenly i feel exposed
Naked, you know
All i feel inside
Please dont use it against me
I trust you.

Chronic Illness · Expression · Health · Uncategorized

Stop appropriating the language that explains my condition

To casual observers, the schedules of chronically ill people appear erratic. We are active today, housebound tomorrow, and the next day is anyone’s guess. We require flexibility from others, but rarely provide it in return. As many of us present a deceptive picture of health, resentment can build over the inconvenience of our behaviour. Accusations of being lazy, inconsistent or bludgers follow us everywhere, and can be more demoralising than the symptoms which limit our activity in the first place.

One of the more effective ways we’ve found to gain support for our baffling time management strategies is Christine Miserandino’s ‘Spoon Theory‘.

How do spoons relate to chronic illness? Technically, they don’t. But Miserandino was in a diner when asked to share her experience of Lupus with a friend, and she used spoons as a visual aid. She explained that healthy people have unlimited “spoons” (potential activities) and freedom to use them at will. A “spoonie” (chronically ill person) has limited spoons, and must manage carefully.

-See the rest of this post as well as others at http://www.dailylife.com.au/news-and-views/dl-culture/stop-appropriating-the-language-that-explains-my-condition-20160113-gm4whc.html

Uncategorized

IC MY NEW LIFE

She is an amazing writer and also suffer from IC. Feel free to check it out and share! ❤

https://m.facebook.com/icmynewlife/

Uncategorized

The Spoon Theory

By Christine Miserandino

My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing.

Cartoon image of Christine Miserandino holding a spoon
As I went to take some of my medicine with a snack as I usually did, she watched me with an awkward kind of stare, instead of continuing the conversation. She then asked me out of the blue what it felt like to have Lupus and be sick. I was shocked not only because she asked the random question, but also because I assumed she knew all there was to know about Lupus. She came to doctors with me, she saw me walk with a cane, and throw up in the bathroom. She had seen me cry in pain, what else was there to know?

I started to ramble on about pills, and aches and pains, but she kept pursuing, and didn’t seem satisfied with my answers. I was a little surprised as being my roommate in college and friend for years; I thought she already knew the medical definition of Lupus. Then she looked at me with a face every sick person knows well, the face of pure curiosity about something no one healthy can truly understand. She asked what it felt like, not physically, but what it felt like to be me, to be sick.

See the rest of her blog post as well as other things at

But You Don’t Look Sick